Happy Halloween! It's a JUNGLE out there

Had a fun day at home today for Halloween!

Because Logan really can't be around any other kids yet we had to stay home and pass on the Halloween parties and Trick-or-Treating.  We still had a great time getting them dressed up in their Monkey and Giraffe costumes.  Madison is always a goof and Logan has been getting better and better each day.  Thought you might enjoy seeing a few pics of them from today.

All of us....Recovering

Thought I would drop another pic of his favorite TShirt...

We got home on Monday night and have been trying to catch up on life after being gone for a week.

Logan is doing pretty well.  He has definately been having some issues of non-stop crying spells for a bit.  Not sure if it's pain or if it's just his system getting used to food and flushing out things.  Overall he seems to be good though.  He gets the stitches taken out on Friday of this week from where the drain tubes were in his abdomen.  Thought about cutting them out myself...but opted to let the pro's do it instead.

Madison is happy to be back home.  She has been a little under the weather and we think she has allergies.  Kind of hard to believe that a small child would have allergies...but something is definately going on with her and everything we looked up points to allergies.  She gave us a rough time last night up every 30 minutes (Yawn).

Jen is hanging in there the best that she can.  She is the ultimate mother and partner!  She takes care of the twins every day & night...helps me with work constantly and somehow keeps our household in order.  I have no idea how she does it all.  I do think it's totally getting to her and she really needs a break.  Wish I had the answers, but we just keep taking it one day at a time and know that as long as we have each other and our family, all will be ok.

I have been stressed out to the max.  There is some huge pressure lifted now that we made it through Logan's surgery.  I did wake up this morning and could feel that every muscle (and I use that term loosly) in my body was tense.  I think that with everything we have going on right now, it has really taken a toll.  Hopefully the next few days will prove productive and by the weekend I can start to unwind a bit.  I still don't think I have completely processed that Logan's heart is fixed and that he will be ok.  I catch myself thinking about what a strong little boy Logan is and how he went through that like a champ. 

We want to thank everyone for following along and offering support in the many different ways that you all have!  It's wonderful to have so many good friends!  We are going to keep up this blog with updates on how Logan is recovering and some insight on how we are coping as a family.  We were reading another blog about someone's child that had TOF surgery last night and they had a question about how to deal with when your child asks about his/her scar.  We saw all kinds of responses where other kids dealt with it in many different ways.  A whole new thing we hadn't even thought about.  We are just glad he is ok...and we can deal with the other stuff.  Sorry for the ramble.  Will update more between now and over the weekend.

WE ARE ALL HOME AGAIN!

Hi everyone!  We are home!  They released us earlier today.  Will update some more in a bit after we get settled.

Just glad to be home.  As Dorothy would say "There's no place like home!"

Sunday Evening Update

Not a whole lot to report this evening.  Jen and I went and got some dinner while Logan was taking a nap and got a bath.  One of his favorite Nurses is watching him tonight and she does such an awesome job.  What a relief!

Things still look good for us to go home tomorrow, but I'm sure I will get the final word tomorrow morning when the Dr's are doing their rounds.  Glad the weekend is over.  Never thought I would say that.  Interesting how your perspective can change your outlook.

Right now Logan is sleeping and all his heart rate and O2 look great.  Hope you all have a wonderful evening.  Say a little prayer that Logan has a great night and gets to come home tomorrow!

Logan gets his way!

Logan finally got his way and now has both hands to chew on.  His last IV was taken out about 30 minutes ago.  Not by choice of the Dr's.  Just happend that the nurse didn't bother to check to see if it was still good and started pumping some Morphine into it.  His hand started swelling up and the Mophine mixture started running down his arm.  Not the first time that this happend today!  Another indicator other than the clear liquid running down his arm was the ear piercing scream coming out of Logan's lungs.  I better not get started.  Can you get a Nursing Credential from a Cracker Jack box?  Don't get me wrong, there are a lot of good ones here too.  Most of them are fantastic!

In any case, Logan is much happier now that the IV that was casing him pain all day is finally out and he can once again suck on that hand.  Jen is going stir crazy and starting to do little dances around this place.  I think it helps keep her sane.  Hmm...not sure she ever was to begin with though!  :-)

Logan really looks good.  Heart rate has been good all day.  I'm fairly certain we are heading home tomorrow.  What an adventure this has been so far.  It just tears up my stomach every time I think about what this little guy had to endure over the last week.  He is truly a tough little Logasaurus!  I'm so proud of him.  We both miss Madison somthing fierce!  Hopefully we can all be back together and in our own beds tomorrow!

Possibly coming home tomorrow!!!!

Logan had a really good night last night.  He started to get back on more of his normal schedule with eating and sleeping.  His heart rate dropped back to a normal level all night and he was doing really good this morning.

The Dr's just came by and had to replace some of his bandaging over his wound.  Logan was not happy about that one bit.  But he is finally calm again.

They also told us that they want to keep us here one more day just to be safe especially with his weird airway.  They are really impressed with his progress and would normally send him home today....but in his case it looks like tomorrow!  It's not 100% yet.  But I would bet on it!  Wow, I can't believe we are finally going to go home.

Being in here is really starting to wear on both Jen and I.  Some nurses are terriffic and some shouldn't have a job here at all.  We are managing though and have been really demanding the things we want for him.  Jen is really doing awesome with Logan.  More later...that's all for now.

What a trooper!

Logan had another Echo Cardiogram last night.  He did exceptionally well with letting the Dr. poke at him with the wand.  Then again the Dr. was great with him too.

The Echo looked great and there didn't seem to be any concern about his heart.  His EKG they did earlier as well came back normal.

Jen ended up staying with Logan next to his bed and sent me back to RMH to get some sleep.